but if you're wondering about the title, please read to the end.
It's really precious!)
For those of you who know me, you know what this chapter stuff is about.
At least until something changes, and I hope that is a LONG way off!
walk on the beach with my girls and CUDDLE the cutest boys EVER,
If I want to talk about something silly like painting a room white or pink decorations for the Holidays, than that's what I'll talk about:)
and I LOVE YOU!!
Taylor, you weren't here initially but you knew, even from far away, when I was struggling and I know it hurt you not to be here.
I hope you understand why I didn't let you come home when you heard about me.
I wanted you to be happy and continue to do something you love.
but this time felt different.
even when we both know it is important to you,
if you think I need a break.
And you are ALWAYS willing to do the cooking if I feel lazy...
which seems to be OFTEN:)
I know this isn't always easy and you don't need ANY help being kind and compassionate
but this will make you even more sensitive to others.
who hates to think of me taking a shot
and will move mountains not to look at my medicine case:)
And that's okay Jordie!
I actually think it's kind of SWEET...
You would do anything for me also and you do!
(you DO know that medical school + sick people - shots, right? :)
You are also willing to sacrifice tennis lessons or fun times with friends if your MUM needs a break:)
(***We recently spent time in LONDON and since then, I am "MUM" to my girls. LOVE IT!!!)
for what turned out to be a rough summer.
You were such a strong young lady through a very difficult time
and this experience will be with you forever and make you an even MORE compassionate person than you already are and an INCREDIBLY compassionate Dr. someday:)
AND...you tried to keep my mind on FUN things...like parasailing...
even though I know that's exactly what we raise them to do.
But I hope I have at least a few more years before I face that:)
And I know that I have GOOD GIRLS and we will always be there for each other!
It was to be a change she could write freely about for about 30 minutes or so and not to worry about punctuation...just start writing...
so she wrote about me.
1.05 Explore the Changes in Your Life
Change has the ability to completely alter your life at any time. Most of us will probably never understand things have changed in our lives. I believe everything happens for a reason…and yet, I can’t seem to grasp the fact that there is any reason good enough to explain why this happened to my family. In situations similar to mine, you can’t help but think that sometimes change is the worst case scenario. I don’t mean things like learning a new hobby or activity, changing your hairstyle, painting your room, and so on. I mean major life changes that you can never undo or quit if you get tired of it. The change that happened over the summer was unexpected to say the least.
Summer is my favorite time of the year. There’s hardly any stress and a lot of relaxing and having fun with family and friends. My story begins right after returning home from a girl’s trip to Maine, where we had to drop my sister off at a ballet intensive. While waiting in the Neurologists’ office with my Dad, who I could see had tears in his eyes and was someone who never really cries, I knew not only did our summer change but our lives. My Dad is very high up in administration for the two big hospitals in our town. Because of this, when he was driving me to my tennis tournament that morning and instead pulled into the Neurologist parking lot, I knew he had seen the results of my Mom's brain MRI scan since it was done at his hospital. With my sister gone for 6 weeks, it was a very hard morning for me. I was the one who was with my mom that day when my dad went back to work. I was the one who had to be strong during her first day of IV steroids.
My Mom was diagnosed with MS (Multiple Sclerosis) on July 2 . The most devastating thing is the unknown. MS is an extremely unpredictable disease, which means we won’t know how serious her case is for about a year or two after watching the progression. As of right now there is no cure, only a shot she has to take everyday for the rest of her life to keep symptoms away, and hopefully they stay away! It was a scary time for everyone. I was glad my Mom was getting so much support through phone calls, emails, and letters. but part of me wanted everyone to stop telling her that it was going to be ok. I remember thinking that it most definitely was not ok at the time and it might never be!
I feel so young when I cry or get upset about this, but to be honest I could be 30, 40, or 50 and if this happened I’d still be hoping it would all go away like a bad dream! When you think about it, it’s not every day you’re told your Mom has lesions in her brain that aren’t supposed to be there so I think I have the right to cry no matter how old I am. I am so thankful for my friends who were more caring then I could’ve imagined. Things are basically back to normal, which is a relief! We live our lives like any other family. We aren’t as upset about it as much anymore and we aren’t mad it happened. It did happen and it’s just a part of our life now.
In the end, one of the most important changes in my life was caused all because of MS. Two meaningless little letters but when put together they change lives. Like in all things, there are good days and bad days. This whole experience has taught me that anything can happen and it’s important to treasure the time you have with the people you love. We are going to make the most of this. My mom can still do almost everything as before but now we will try to raise money for a cure or better medicine for her disease. When people ask me what the orange bracelet on my wrist stands for I simply say “my Mom”.